In pediatrics there are many childhood diseases that can affect the self-esteem and quality of life of those who suffer from it, especially when they are chronic diseases, which limit their physical and social activity, especially absence from school. Among these diseases we have what is known as Chron's disease (CD), which is an inflammatory and idiopathic pathology of the intestine, which affects any part of the digestive tract, from the mouth to the anus. What can parents of children with Chron's disease? We talk about the disease and also how to do that does not limit or affect the daily life of your child?
The symptoms of this disease can occur both locally, that is, in the digestive system (abdominal pain, abdominal cramps, diarrhea and rectal bleeding, flatulence, bloating, vomiting and anal fissures) and at a general level (fever, fatigue, loss of appetite, hair loss, cramps, depression, mouth ulcers, all of which lead to growth retardation).
This disease can have long periods of remission (years without symptoms) and symptoms can suddenly return.
Something that worries parents a lot is how a diagnosis of this disease is carried out. The first thing that the pediatrician or gastropediatrician will do is a complete physical examination of the child and will take into account the personal and family history of the child and then request blood tests, endoscopy (gastroscopy or colonoscopy), complete stool examination, especially discarding blood present, and, finally, an echo resonance, which will give an excellent image of the lesions.
The Crohn's diseaseUnfortunately, when it is installed it is for life, although I already told you that it could have periods of remission, with improvement of symptoms and quality of life, but at the same time there are relapses with a reactivation of symptoms.
There is, therefore, no specific treatment, but steroids are used to control disease outbreaks and momentarily improve quality of life; Vitamin therapy is also used to replace the losses caused by the same disease.
In this disease it is important to take into account the following recommendations to keep our children with good self-esteem, reduce school absenteeism and promote a good quality of life, as far as possible.
- Teach them to live with this disease and make it more bearable.
- Take them to consult with a child psychologist so that they can face emotional problems, react appropriately to a possible bulliyng and have good communication.
- Keep them in physical activity, practicing a variety of sports, as this keeps them active and distracted, which improves mood and stress.
- Keep them a healthy and balanced diet, monitoring what they eat and possible symptoms. It is important that they understand and learn what they should and should not eat, especially when they are away from home.
- Supply them vitamin supplements, as they may be deficient in Vitamin C, Vitamin B12, folic acid, iron, calcium, zinc and magnesium.
- Avoid smoking around the child, as they can make symptoms worse. Studies have shown that babies or older children who are passive smokers are more likely to suffer from Crohn's disease (when the disease is established, cigarette or tobacco smoke depresses their immune system, and therefore worsens the symptoms) .
- When they go on a trip, plan them well, that is, in terms of stops to go to the bathroom, bring toilet paper, wipes, enough underwear, extra changes of clothes, enough diapers, etc.
- Join support associations, not only for the patient, but also for the parents, since they must learn how they can help their son or daughter to live with this disease that will last their whole life and how they can teach them to face it, especially at school or out of home. So they too can have better self-esteem and improve their quality of life.
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